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Preface

Audiobook Preface

Preface

I spent twenty-two years learning to be visible, only to discover that becoming real is not the same as staying real.

As a very young child, I hid behind a telephone pole when my mother told me to go play with the other kids. Not because I was playing hide-and-seek, but because without a secure base at home, I didn't know how to reach out to the world. I climbed trees and disappeared into the woods—not to escape the neighborhood, but to escape my parents. From the sudden punch or kick that could come out of nowhere. From parents who built a pool and took us to Disney but never once asked if I was happy, never seemed to notice or care who I actually was. 

Even as a child, I could see the disconnect—the performance of family for the outside world, the indifference behind closed doors. By fourteen, I was asking questions I had no language for yet: Why are you doing these things for us when you don't actually care? The only time I remember being held was around age three or four, in swimming lessons, my arms wrapped around the young instructor's neck, and even then I felt certain I didn't deserve it.

By high school, I had perfected invisibility. I sat silent in classrooms, never called upon, a ghost among my peers. I went away to college and immediately started counseling—not because I believed I could change, but because I couldn't keep living this way. I set goals: speak in class, ask someone out. 

For most of my undergraduate years, I remained the third person with every couple—best friend to both the boyfriend and girlfriend, even best man at a wedding, but never part of a couple myself. I finally got two dates my senior year—one date each with two different people. I never spoke in class. I'd come so far, but something fundamental was still missing.

Then, in 1990, after graduating from Georgia Tech, I was seen through the eyes of love. For the first time in my life, I had proof that I was special, that I mattered, that I was real. It was the missing piece—the experiential knowledge that no amount of therapy alone could provide. She died at the end of that same year, and for a time I wondered: what good is it to find this love and have it taken away so suddenly? But something had awakened in me that couldn't be undone.

In April of 1992, I took a microphone and read poetry, choosing to be the center of attention for the first time in my life. Three months later, I met Lynn. What followed over the next eight years—from 1992 through 2000—were years of success and joy beyond my wildest dreams. Graduate school in 1993, becoming a therapist in 1996, full licensure in 1998. Leading therapy groups and counseling couples despite having gotten only two dates in all of college. Building a life with Lynn—enduring love and earned secure attachment, learning in adulthood what I should have known as an infant. 

I want you to understand what's possible. I could have become like so many others who can only connect with narcissists like their parents because it's familiar. I want to show you that it doesn't have to be that way. That even from a childhood like mine, you can find real connection, meaningful work, genuine love. The kind of success that looked, for all the world, like I'd been cured of my past.

By July of 2000, everything seemed perfect. By September, I'd lost it all.

And that's when I learned what I'm still learning now: psychological wounds don't heal like broken bones or diseases cured by vaccines. You can grow, transform, build a beautiful life—and then lose it and discover that all your old patterns are still there, waiting. Letting my parents back into my life recreated the trauma of childhood. By my mid-fifties, I finally did what I should have done decades earlier: I cut off all contact with my family. This is the story of learning to be real, forgetting I was real, and finding my way back—not to where I was, but to something I'm still discovering. This time, with tools I'm learning to use.

My Invitation

Have you ever felt invisible? Not just shy or like a wallflower, but truly unseen—not noticed, not known for who you really are? Noticed social anxiety in yourself? This book is for you.

You might also recognize yourself here if you grew up in a home where you had many things, but your feelings were never validated or didn't seem to matter. Where everything looked normal from the outside - maybe you even say things were good, you weren't abused—but somehow you became responsible for a parent's happiness or emotional needs. That's called covert narcissism, and it's more common than you might think. And narcissistic patterns don't only show up with parents, they can appear in partners and other relationships throughout our lives.

 

This isn't about blaming parents. It's about understanding what happened and finding your way forward. As the title states, this book covers Complex-PTSD and/or Developmental Trauma—regardless of where those wounds originated.

You may not relate to everything in these pages—everyone's experiences manifest in different ways. Because we have much to cover, take it slowly. I hope you'll relate and know you are not alone.

Tell Me I Am Not Invisible: A Story of Social Anxiety, Attachment, and Complex-PTSD

A Memoir About the Necessity of Connection

 

Tell Me I’m Not Invisible is a memoir for anyone who’s ever felt unseen, unloved, or alone.

 

Bruce Whealton grew up in silence. His childhood was defined by emotional deprivation, physical abuse, and a family that made him feel like a ghost—unseen, unwanted, unworthy. For years, he believed what that world taught him: that he wasn’t enough.

 

That he wasn’t loveable.

 

And then something miraculous happened.

 

He found love.

 

Chapter 70: Moving on and The Conclusion

I was able to find an intimate relationship with a woman again. I got married in Ankara, Turkey to Elnaz Rezaei Ghalechi or Elee, as I call her.  

Elee had been submitting poetry to the poetry magazine that I was publishing with Jean Arthur Jones called Word Salad Poetry Magazine. I, at one point, asked her "would you ever marry someone like me?"  

I had thought she was very beautiful. We began talking on the phone and chatting with video chat across distances that separate us. She was in Iran.  

It would not be honorable for her to come to America without a commitment toward marriage first.  

It might seem like a strange way to get married for Americans. We date people and get engaged, then have a period of engagement, and then get married. Elee and I only knew each other virtually when we made the decision to meet in Ankara and to get married.  

Iran has an embassy in Turkey. I had to tell them that I was going to be a Muslim for Iran to allow the marriage to be recognized. That just meant that I had to say something.  

Ankara was very nice. The Mosque there is very beautiful. The food was amazing. The people could tell that I was an American. I walked outside the hotel and they would speak to me in English about the food that they wanted me to try in their restaurants.  

Then we had to wait almost two years for her to get a visa to come to America to live. She even went back to finish her education in medicine. Elee had been training to be a doctor. She had completed that training.  

I hope Elee can help me to reach my goals again, and to help others who will benefit from my services in the human services and psychiatric field.  

Elee and I got separated in 2018. We weren’t communicating well. We both thought the other one didn’t want to listen to them. We fought all the time. I kept trying to get her to go for counseling or work on the problems in our relationship. I was afraid to lose her and wanted to work on our relationship. She seemed uninterested.

We just are not meant to be married.

So, we are in the process of getting divorced. 

We are friends though. So, it's complicated. She is there for me when I need her. She paid for me to get into Epcot Center this past December of 2020. It was such a special and memorable event. We also went to Daytona Beach and then to Cocoa Beach. 

Getting into Epcot center is so expensive now. It costs $125 per person! Elee is not rich at all. We had to pay another $25 to park there. Then she paid for food that day. When you buy food inside the park, it is very expensive. It's like $5 for a small candy bar. The most affordable place we could find for lunch cost about $40.  

The cost of renting the car for five days with insurance and coverage for the tolls was almost $200. Yes, I paid for some of this but it would not have been possible for the day at Epcot had Elee not paid for that day. She also took me out for a crab or lobster dinner overlooking the beach at Cocoa Beach.

Dear reader: This book is a true story of the life I have known. I am writing to you to share this story in the hopes that we can make sense of things. I welcome your response and feedback on the story you have read.  

How do we make sense of suffering like this? Or injustice? 

I would wonder every year since that plea deal that had been threatened into taking, how I could still get justice. I haven’t stopped wanting that. Ana and Jimmy should pay for what they did to me. And no amount would be enough!

I keep wondering, how can I prove my innocence and Ana’s guilt (or Ana and Jimmy’s guilt? Clearly, they had a well-contrived plan

If you are wondering why, I would even consider a plea deal, consider the fact when I was sitting covered in blood, knowing that my attacker didn’t have a scratch on her, that didn’t matter at all!

The sense that I could not get justice or do anything made me become suicidal in December of 2019. 

My memories of the good times with Elee are complicated by the fact that we separated the way we did in 2018. 

Anyway, I was told by a law firm that no lawyer or attorney could possibly help me. They said there were no options. I cannot overturn the conviction, appeal it. I cannot get it expunged. I cannot sue to make the case in a different court.

Since everything that makes life meaningful and which brings joy to me is social in nature and is defined by connections and relationships, it seemed like no hope existed for me ever. This would follow me forever. 

You know how I like kids. Who would let a guy adopt children if he has been convicted of a violent crime?

Even volunteer opportunities seemed out of reach. That’s what I was thinking. 

I am shy so I fear rejection and now with lies out there, I have reasons for my fears of rejection. I had tried to go on a date once and it seemed like she found out something about me online and didn’t show up.

I suppose getting this book out there and telling the world who I really am is my way of changing things. 

It’s ironic, John Freifeld died and that is why I cannot sue him for what he put up on the web about me. The lies. 

Those lies show up in a Google search. 

I felt things were hopeless for me in every avenue and area of my life – everything that makes life meaningful and happy for me. 

So, that’s why I started taking those pills and drinking back in mid-December of 2019. I wanted to end my existence. 

Then I met some people and realized that there are warm, caring, and compassionate people in the world with empathy. People I met in the hospital, other patients.

The year 2020 was one of the best in many years for me, despite a pandemic.

So, relationships, friendships, and more will connect me with life.

I will continue to pursue getting my clinical license in social work again. I will continue to pursue employment in the field. Because I learned that when people do get to know me, they know my character, my goodness, my compassion, and my empathy toward others.

What can you do? Protest injustice. Stand up for the weak and oppressed!  Do not accept the status quo when it is wrong. Do not accept ideas like "that's just the way it is." It doesn't have to be that way. Think about how things might be very hurtful to someone. Offer that person comfort, compassion, and empathy. Listen with understanding. Offer a shoulder to cry upon.

I was considered by the government to be disabled during the period that included 2004-2006. So, I should not have been able to enter into a plea deal. 

Help me fight to get justice. 

I have so much to offer the world as you can imagine by now. 

So, my request is not just about me but the people whose lives I will touch in such positive ways.

Justice for me is doing those things that I used to do. And I will continue to advocate for the vulnerable. You can do that too.  

Comfort the sick and injured. Fight for justice. Never accept injustice. Never believe the lies that "nothing can be done" or "that's just the way it is." Demand change!  

Listen, listen, listen with a warm and compassionate heart. Find out how you can help. What does the person need? Just ask and then listen. Be a change agent.  

If a person is hungry, give them food. If a person lacks sufficient clothing, help them with clothing. House the homeless. If you see injustice, protest, speak up, and be the change so that justice can triumph over injustice.    

Again, I must repeat the words of Edmund Burke who said, "the only thing necessary for the triumph of evil is for good men to do nothing!" How true.  

If you cannot fix the problems a person is facing, after you listen to that person, go speak to others in society. They need to hear about what happened or what is happening. Society needs to know. The world needs to know. That's how we show love.

This book should inspire action! 

Yes, for me but not just for me!

For me, spread this story to the world. Let's see what we can do together. Let's fix these problems that I have described. I don't know what the solutions will look like. I don't mean to be rude, but the solutions will not be abstract ideas or matters of faith. 

Just as a hungry person needs food, a person who has experienced injustice needs justice! 

Chapter 69: More Thoughts About Lynn

Some people have questions like what happened to my first wife, Lynn. She died in 2015, I found out. From cancer. There had been no "we" for all these years. Merely talking about her and what happened has been so painful.

Before I met Elee, my second wife, I had tried to get back with Lynn, but it never worked out. As I said in the last chapter, the times when I saw her down in Wilmington were very awkward and surreal. What could my friend Thomas do? Other than understanding what I must have been feeling.

 I couldn't say anything when she was right next to me. I’ll get to that scene below.

I had been more comfortable with her than with anyone else in my life. We had trusted each other implicitly. We had such a connection. I had stated the fact that I would have done anything imaginable to hold onto a relationship with Lynn. That fact cannot be understated.

I should have said something when she was right next to me. I had previously tried so hard. I didn't want to call her after a certain point about three years after we had started living our own lives - she with her mother and me in another city.

I had asked others to contact her and convey how much I felt for her. Obviously, those who heard my story were moved to call her and to convey this information. I had hoped to get some information that might lift my spirits.

I believe it was too painful for her to have to move on without me. I didn't want to cause her more pain. I don't know how she dealt with the memories of when we were in love. 

 I am so sorry!

Lynn had this survivalist instinct due to her illness. After we watched "Titanic" we were discussing the movie with a friend of hers who had cystic fibrosis like her. Her friend and I had agreed that we would jump back into the boat as the girl did to be with the guy.

Lynn disagreed. We had been living together for years at that point. So, I guess she was saying that she would not jump back into the boat to be with me. I know with one hundred percent certainty that I would jump back to be with her if she was in peril instead of getting into the rescue boats that would result in my near-certain survival.

I would NEVER be able to go to safety on a rescue boat with Lynn in a sinking ship. She would not find any justification in dying on a sinking boat just to be with me a bit longer. She might have found it senseless to stay on a sinking ship. I would have done anything to be with her, to help and protect her, no matter what.

So, there was a combination of factors that kept me paralyzed from contacting her from 2003 until her death in 2015. I had not wanted to make her life more painful. What I was going through was extremely traumatic for me and she was in survival mode.

There was another occasion when I almost spoke to Lynn during another awkward moment, years after we had been apart.

It was in late 2009.

Jean had invited me to come to a lounge on a Saturday evening in downtown Wilmington. He told me he was having a workshop for poets. We would share a poem to be workshopped. We would read it and ask for support or feedback from the group.

I had called him earlier that afternoon from Wrightsville Beach near Johnny Mercer’s Pier.

I had been here at this location not long ago… up at the front area is where they have the poetry readings and music. I don’t think this place existed in the 90s.

I heard Lynn would be there.

My mind had been racing with ideas about what I would or should say to Lynn if I said anything. This would be an interactive event… My heart raced throughout the next few hours as I headed in that direction.

What would I say?

I didn't feel the need to explain what had happened to me regarding the false accusations and conviction. I knew that she would not have wondered about that. She knew the kind of person I was.

Recently, I figured out in my mind that I had been a good person - always. So, the idea that I was undeserving of her was a false belief I had back then. It's sad that I figured this out after she died!

I had gotten so close to saying something on another occasion.

That evening came… I was told to go to the room in the back by Jean. 

A few people were talking and then they left the room. Lynn was standing there - alone. I was right nearby.

Had others planned this? Left us in a dark, quiet, private room.

I was thinking and at the same time, my mind was trying to muster the willpower to do or say something. I was thinking of something to say. My heart pounded hard in my chest. I felt frozen – not cold but motionless. I was composing thoughts "I... I what?"

I imagined myself saying "I love you." and her answer would be "I know."

Wow! I just realized what a cliché that would be. It's right out of "The Empire Strikes Back" when Han Solo is being frozen in carbonite and Lea tells him. "I love you."

I'm sure I would have broken down, falling to my knees, weeping bitterly, crying "I love you so much. I NEVER stopped being in love with you."

My mind’s a bit blank as I think back to what happened after that uncomfortable moment when I was there alone, close enough to touch Lynn. 

Others filed into that room from the front. They took seats. Four to my right. Jean is the “leader” – he sat on the right. Three on my left. And then Lynn. My hands and arms were trembling. My breathing was fast and shallow. I’m sure others could hear me nearly hyperventilating.

The rotation was coming around toward me. I had selected a poem that I wrote called “Fugue State.” A fugue state is a symptom of some dissociative disorders. I said they are caused by “trauma”, but I could have just said extreme stress or distress. I had written this about the dark times I had known not too long ago.

Sometimes I don’t know what I want to say until I say it. Below is the poem that I wrote. It’s in free verse. 

(I realized later that it was the imagery of dreams, disorientation, desolation, and despair are that I was trying to convey. I didn’t know how to do this with rhyme or metered verse.)

Holding the poem in my hand I begin to read.

Fugue State:

In the dream…
I think it’s a dream -
I’m not sure how I got
here or where I was going.

It’s dark.
I look at the street signs
that I walk past,
and for a time I’m
not finding any that I recognize.

Then I begin to think
that things look a bit
familiar but I’m…
uncertain.
I want to run
but I’m tired
and unsure how far
I have to go.

I try to remember
but nothing comes to mind
to explain
how I got here…
where I am going…
where I live -
where my home is -
or if I have a home.

I don’t seem to be injured.
I want to remember…
I begin to question
whether I even know
for certain
who I am?

The people I pass
look unfriendly - 
not dangerous;
they just don’t convey
anything resembling kindness
or friendship.
They don’t know me.
They don’t pay much attention.

What should I say anyway?
Ask them to tell me who I am?
Or ask where I am?
I cannot ask how to get
where I am going
because I do not know that.

I don’t know if I am afraid of the ridicule
or convinced of the futility
in even trying to get help.

I want to fall down on my knees
and cry… cry out to someone, 
“Please help me!”

But I’m paralyzed by my fear
and all I can do
is keep walking
and hoping that somehow
things will become clear
and make sense.

--------------

I can’t remember the feedback that I got. 

When it came around to her, to offer feedback on my poem, she said "I pass."

I got up moments later, the feelings were overwhelming me. I walked out into the night, moving fast. I stopped into a bookstore and looked at some books. I got a call from Thomas, who was on the way. 

“Okay, I’m heading back there, I’ll see you in a little while,” I said.

I returned and took a seat near Jeff Wyatt in that front room near the bar. He had been friends with Lynn and me just like Thomas had been. He went into massage therapy at some point. 

I suppose that my last words to Lynn were "Fugue State." My life had been a trance since I had to go on living without her being a part of me and me being a part of her.

I wasn't even mentioned in her obituary.

To this day that hurts so much to think about it.

I mean it really hurts. My tears blur my eyes and roll down my cheeks as I write this in 2021. It feels wrong that I didn't try harder when she was right next to me. 

There was no closure. I had failed to just say those words. I love you!

Chapter 57: My Final Days in Wilmington - Reflections on What Happened

For a few weeks in mid-2000, I had been making over $1000 per week. Yes, indeed. I had forgotten to mention that previously in this book. Things were really taking off for me. In June, I had been putting in more than forty hours per week and loving that. I wouldn't want to do that forever, because I wanted to enjoy the life I had with Lynn - before everything happened. There were a couple of weeks where I brought in over $2000.     

I had plans. All that collapsed in August and into the first week to ten days of September of 2000. I am not going to offer an itemized list of how I went from being on track to make six figures per year to nothing. The funds that I had were not all for me, of course.  

I want to try to comment on the nature of what was stated by the clients who filed grievances with the North Carolina Social Worker Certification and Licensure Board (NCSWCLB). I mentioned that I knew that John Freifeld had composed the entire grievance/complaint letter for the clients. I found out from my lawyer that the board was aware that he composed the entire statement that they made.  

Some aspects of this complaint letter were vague and likely a form of projection. He filled their heads with the idea that I had only been interested in meeting with them each week because I found them attractive. It seemed to me based on my experience that he was projecting his own motives toward women onto me.  

I do not know exactly what was going on at the home of Jessica, the first client he referred to me when he was still living in Virginia.  

I had heard months earlier that she was having "flashbacks" and "panic attacks" and that was why she and her husband needed John to be living there for free. Yes, that was stated at some point. They thought he was helping her. My efforts to point out how they were getting worse and not better with Freifeld's help were not effective enough.  

These individuals who met in one of the groups that I had I believed were spending time over at Jessica’s home. I heard that he had a few rooms set up for helping them process or deal with their memories/flashbacks of past trauma. Again, they were well aware, as I explained earlier, that he was not trained to know how to set up anything of this nature.  

I had discovered the "conspiracy theories" on the internet following some interactions with two of my clients. I had just done some searches online with various keywords and that led down a rabbit hole.  

I remember how I had as an activity for therapy groups that were like scrapbooking. It seemed like an icebreaker or a way to facilitate discussion. I had used this with various clients over time. I'm only mentioning this because I remember a book that I stumbled upon online called "Paperclip Dolls." That made me think of that workshop on dissociative identity disorder (DID) that I organized in early 1999 with Louise Coggins, MSW, LCSW.  

Louise had mentioned ritual abuse in more than one context, including at that workshop. And she talked about using scrapbooking with magazines as a creative form of therapy. 

I thought I was hearing facts and I did not put "ritual abuse" into a context with "satanic ritual abuse" which was part of the conspiracy theories that were being spread across the internet during this period. My discovery of these "conspiracy theories" was only after I had noticed a bizarre theme coming up in therapy with Jessica and one other client.  

Anyway, the book "Paperclip Dolls" was another book that was in that same vein of a person discovering and reconstructing memories of "satanic ritual abuse" and mind control programming. By "programming" I mean something like behavioral psychology techniques where some cue or trigger could elicit a deliberate programmed response. Think of how Pavlov's dogs would salivate in response to a buzzer or a light because it had been paired up with dispensing food for the dogs.  

Somehow the author of "Paperclip Dolls" had discovered that she had been abused as a child and she had discovered the memories of this from various images in magazines that caught her attention. These discoveries and the sense that they caught her attention seemed to confirm that her new memories must be true. She came to believe that she must have been part of a government program that involved mind control.

This is what the author of Paperclip Dolls had discovered. I hinted earlier in this book that I had been flipping through that book on a very memorable moment and sexually intimate experience that I had with Lynn back in April of 2000. At the time, I had no idea that I was going to be accused of planting false memories of "satanic ritual abuse."  

I wish I could offer more details about how any of my clients had begun to believe that things like this happened to them or why they believed it happened to anyone for that matter. Again, I didn't know what was happening at the home of Jessica, where John Freifeld was living and seeking to help a few of my clients.  

I had mentioned that my colleagues - members of the local Society of Clinical Social Workers - suggested that I tell these clients that I could not help them if they were also receiving treatment from Freifeld. For one thing, everything had been happening so fast that I had not had time to implement this policy. I also don't know how he or the clients with whom I spoke about this felt.  

Family Connections

I mentioned that I had turned to my family for support when Lynn became ill. Any reasonable person would understand how traumatic or tragic all this would be and why I would need support.  

Up until last year, I have maintained a relationship with my parents and my sister. I mentioned earlier that I had not spoken to my brother since shortly after I made a call to child protective services. I had seen him lose his temper and push his daughter Emily up against a wall like she was a rag doll and she had told me when I asked her about some marks, that “your brother did that.”

As I was saying, I had maintained a relationship with my siblings and my parents until recently.

Then it hit me. It seemed so insane that they were not there at all during this period. They had not visited Lynn in the hospital to see how she was doing. Heck, they never even sent a card to me or her. They seemed indifferent to my suffering.  

My sister, Carrie Whealton, has never married or been in love. However, it's not reasonable or rational to suggest that she would not understand what it would be like to lose the love of one's life. She has parents and grandparents.  

I'm not saying that I am JUST angry that this happened. What I mean, is that there has never been any explanation offered for how or why they could have acted that way. It made me feel like I did not matter at all in their eyes. My success did not matter. My happiness didn't matter.  

I cannot spend my time speculating on how or why they made those decisions. I know that I deserve better. 

I suppose I could have been upset at Diane for not caring at all that I had nowhere to do, no income now and I was devastated beyond being able to cope with life at all. But my sense of survivor’s guilt kicked in. So, all I felt was shame and worthlessness. 

We couldn’t get married for health and insurance reasons, so it had seemed too easy to deconstruct our life. In retrospect, Diane knew we were living as husband and wife. So, I was like a son-in-law

I had always been welcomed for holidays with Lynn. More than that, Diane bought the home for us. Sure, it was an investment but her decision to sell it when Lynn decided that she didn’t think she would be coming back demonstrated that it was for us and that she knew that I was the one that had made Lynn so happy.

She must have remembered that.

I had nowhere to go now. Lynn took the cats. For a while, I asked to take the cats, but I was feeling sufficiently guilty, and I was on the run soon… without anything that I had known for so long.

I would end up leaving my clients stranded as well without an explanation. 

Dear reader, if you have any unanswered questions now, please understand one thing that is key. I was so out of it, so in shock, so unable to process everything, so overwhelmed… I couldn’t figure out anything myself!

I entirely expect readers to have many more questions. When you fully appreciate my state of mind, you will understand why I do not have answers or did not know then… anything.

This might be a good time to make a transition to another section of my book. Where I want and what I did as a bounced around after this, as a ball dropped down some steps, will be described in the next section.

Here’s a poem that I wrote as I reflected upon the horrors of this period, including the inability to handle the trauma of my clients as I had been able to do in the past.

Post-Traumatic Stress Disorder

I’d like to think
I’m just like
anyone else -
that we all have limits…
There’s only so much
we can take…
So much -
Pain… Fear… Loss… Trauma.
There’s only so much
any of us can experience 
and remain sane
and true to
our ideals, our values,
who we are and
the person we have become.
When the pain,
the fear, the terror,
the trauma
exceeds this limit,
We snap
and for a while
we drift away…
away to someplace
in our mind,
someplace utterly unknown,
unexpected,
outside reality…
maybe we come back
and then maybe we don’t…
It depends on what
might call us back.

You will learn about what was happening… not why. You won’t read about someone with a plan or hopes. First, I have a short chapter that is a letter to someone else who loved Lynn.

Chapter 56: The End of Life as I Had Known It - More About Cystic Fibrosis

I was just trying not to believe that it was really happening. The life that I had known for years could not end so quickly, could it?  It was mid-September and I had nowhere to go. 

A meteor had come crashing down upon the life I had known, obliterating everything.  

I kept thinking about how everything had been so right and normal yesterday – not literally yesterday but that’s how it felt.

Then everything changed and I had not seen it coming. I would have done something surely if I had seen danger ahead or if I had known that life would become so extremely challenging.  

It wasn't long after Lynn first stated that she might not come back to me. How could this be? I NEVER imagined a life without her. I also had not foreseen the problems I was having in my career. Who would believe that some fraudster - John Freifeld - would be able to do anything to hurt me or my career and reputation with my clients?  

No one who had not come in contact with Freifeld was complaining about my competency or performance as a psychotherapist. I did have problems and had noticed over the past month and a half I had not been myself or at my best. It didn't seem that anyone actually noticed that I could not still provide psychotherapy for them. 

People were still calling me for appointments, but I had to close down my private practice.  

The fact that there were grievances at all made me think that I better put all therapy sessions on hold for a while. I didn't know where to turn for help though. It had been a few months since I had an appointment with any of my previous therapists.  

I then heard from Diane, Lynn's mother, that she was planning to sell the house she had bought for Lynn and me to rent.   

I had to move out of our home.

It seemed like just a few weeks ago everything was perfect in my life and in the lives of Lynn and me. But it also seemed like it was during another lifetime. How can things fall apart so fast?

My mind went to that song by Don Henley called "New York Minute." It was just the first week of September of 2000. The lyrics went through my mind.

"He had a home
The love of a girl
But men get lost sometimes
As years unfurl
One day he crossed some line
And he was too much in this world
But I guess it doesn't matter anymore"

And then Don Henley sings

"If you find somebody to love in this world
You better hang on tooth and nail."

I had tried so hard to hold onto Lynn!

Then Don Henley says

"And in these days
When darkness falls early
And people rush home
To the ones they love
You better take a fool's advice
And take care of your own
'Cause one day they're here;
Next day they're gone"

Darkness was all I knew now.

And finally, the most poignant lines from the song read

"I pulled my coat around my shoulders
And took a walk down through the park
The leaves were falling around me
The groaning city in the gathering dark
On some solitary rock
A desperate lover left his mark,
He said "Baby, I've changed. Please come back."

What the head makes cloudy
The heart makes very clear"

I was that desperate lover crying out to Lynn "Please come back!" My head might have been cloudy, but my heart was so desperately clear in what I wanted and needed with every fiber of my being.

I used to think about this many years earlier after Celta died in a fire. I had just spoken to her the previous day. Now, with those words from Lynn that she might not come back, I was lost in darkness without a compass or guide.

Not long after that, Diane, Lynn's mother, announced her plans to sell that house. I had moved out already.

A meteor had come crashing down upon my life. The home we had known was being obliterated. My home!

On September 7, 2000, I was summoned by Diane to retrieve what I might want from the home. I wanted Lynn. I didn't want to see these boxes. Lynn wasn't even there. I wondered how she was doing.

The kitchen table was still there. The living room couch still sat where we had it along with the chairs. This is where we would entertain guests - our friends - and family.  

I felt like I was dead - literally. I know that might sound hard to imagine. 

When we experience stressors in life, our minds and bodies react in different ways. We might become anxious and the fight or flight response kicks in. It's like being on the plains of Africa and seeing a hungry lion. Our bodies need to prepare us to run. Something like that happens in response to any type of stress that humans face - we respond based on our thoughts as if we were in physical danger. 

There are other responses like the freeze response which animals use as well. One might imagine an animal playing dead as a survival mechanism. We might also think of this as a turtle withdrawing into its shell and hoping not to be noticed by a predator.   

Something like that happened to me on that day when I showed up to gather what I might want. I wanted Lynn

I was so overwhelmed, and my body felt like it was shutting down. I went into the room where we had the computer and the bookcase. It was around the corner and not visible from the living room. I put my back up against the wall on the left next to the closet with the mirrors on it.  

I slid down the wall and raised my legs up at the knees and stared blankly ahead. I was vaguely aware that Diane was frustrated and angry at me. 

I was supposed to be doing something. She needed to sell the place. I was expected to act. But instead, I just stared ahead blankly. Like I was dead. I wasn’t trying to be difficult or putting on an act of defiance. I felt dead!

I could vaguely register that she had called my mother when I didn’t respond at all.   

Diane was either mad at me for acting this way or frustrated. 

Everything I had known was here... This was our home. It felt comfortable for me and now it was being packed up and put into boxes.  

Life as I had known it was disappearing like ashes from a fire. The love of my life, Lynn, fading away. It couldn't be. My home being deconstructed and taken down as if it had no meaning. 

I wasn’t being told that Lynn didn’t want me to keep visiting her at her mother’s place.

It was too easy to deconstruct the life we had. Somehow, somewhere along the way, Lynn had lost her ring

There had been no wedding and no official marriage certificate. 

We weren’t talking about what this meant. There were no goodbyes. 

It was a reverse of the first few years but all in the space of two months. 

Lynn and I never had to talk about “are you seeing someone else?” She brought up the issue of whether we were more than just friends, one year after we started seeing each other. But it was just a formality. Everyone and anyone who saw us knew we were more than just friends back then.

The engagement happened without actual planning. I mean it was just a part of us saying to each other, “I’m in love with you.” I remembered how I had given her the ring and she was in tears – tears of joy – as I opened the box. I had been shocked because I had thought she knew I was bringing her ring over that day.

We had NEEDED to live together after that. As much as Lynn needed as much oxygen as she could get so had we needed to be together. 

So, when Lynn said she might not be coming back, I didn’t have to ask what that meant. I wouldn’t ask or speak it! 

No, no, no, no! 

This is NOT happening! This is NOT happening!

What happened next, I don't remember. The next few days were dream-like. I was seeing the world as if I were looking through smoke, ashes, and fog. And all I could do is watch.  

Chapter 51: Trauma & Cruelty of Cystic Fibrosis and My Connection to The World

There are things of such darkness and horror—just, I suppose, as there are things of such great beauty—that they will not fit through the puny human doors of perception.

 

Stephen King - from Skeleton Crew

Days before, things were normal. We were happy. We weren't focused on the fact that Lynn had a terminal illness that she had been born with. I am not saying we were unaware of this fact, but life just seemed normal... until it wasn't.  

This might seem hard to understand to an observer. I guess we needed to believe that something could be done about the problem.

Cystic fibrosis reminded us that it was a part of our lives. It seemed like a petulant child who had to be noticed. It was part of Lynn. She had that gene defect such that when a person has two copies of this recessive gene, they always have the disease.  

We had lived a life that we wanted to be "normal." Lynn's health had been good for someone with this disease. So, we were lucky. 

Most of the events in this chapter occurred in August of 2000. However, things started to change in late July 2000.  

We noticed in late July two things that were very troubling. One was that Lynn was losing weight, and the other was that she was having trouble breathing. That can happen from time to time with cystic fibrosis, so the full weight of this didn't hit right away.

I had not noticed, but Lynn told me she was having trouble keeping weight on her. To me, she still looked perfect - beautiful as ever. This is one of the signs of deteriorating health for someone with cystic fibrosis. She had to take pills with every meal the entire time that I knew her. It was routine. However, it is a reminder that the disease impacts her digestion.   

We knew that something was wrong because she was struggling to breathe. She would become weak just doing routine things around the home. She also couldn't go to work.  

It's hard to talk about this without crying. I know it's hard to understand what it is like unless you are living with this.  

We went to the clinic on July 21, 2000, in Chapel Hill, which was about two hours away. They admitted her to the hospital for IV antibiotics. They had found on an x-ray that there was a heavy mucus build-up throughout her lungs and there were large black marks that indicated scarring. Her oxygen saturation was lower, which meant that she wasn't getting enough oxygen in her body. This lasted until July 28.

When she got back, she was having the same problems with breathing.

When Lynn started getting sick in August of 2000, she set up a place to eat and watch TV in the spare room that we had. She was short of breath and needed me to bring her food in there. She would fall asleep in there because she was too tired to walk back into the bedroom. We also couldn't make love or enjoy any kind of passionate togetherness.  

Every night before going to sleep, she would also use a machine that delivered inhaled antibiotics, steroids, and other medications to open her airways. I brought this setup into the other room also. 

Lynn and I had never slept apart in all the years we were living in this home, together, other than the month in which I tried to work over an hour from home. That could not work out well for me, so the job only lasted a month. There were a few times when I was on call for a job or away at graduate school when we slept apart, but that was it.  

Wasn't everything just perfect the other day? Wasn't she telling me how close she wanted to be to me? How she said "I feel like I cannot get close enough to you" as she wrapped herself around me and kissed me so passionately. It felt like just the other day even though that was in April. But in May, June, and July, things seemed great and normal. If she had been getting worse, it wasn't noticeable to me until August.

What I mean is that it was almost like one day everything seemed so perfect and right and then Lynn was sick. Very sick!

These changes in her health hit me like a loud, hard slap in the face. Each time I saw her struggling to get enough air to walk across a room, I was so frustrated, angry, and I felt powerless.

I thought "this is not right! She is only 34!"  

She had been talking about getting a Master's in Fine Arts from the University of North Carolina. It was a competitive school.    

She should be thinking about those things! She should be thinking about normal life and a career just like I had built a career. I was so bitter. This wasn't right! It was not fair!

She needed me to bring her meals to the spare room where she was having to spend most of her time.  

She was gasping for air at times. I could see that she was short of breath. It was so maddening for me because I couldn't fix the root problem. I could bring her food and things she needed but that wouldn't fix the problems. 

Sometimes I didn't want to wait on her because it meant admitting how bad her health was, and that meant she might be closer to losing her fight with this disease. I was terrified. I also felt guilty for not wanting to be there for her whenever she asked!

I felt shame for my actions! I do know that Lynn understood the feelings of powerlessness that I felt. She knew this was taking a toll on me. I wasn't being mean and irritable at her for asking for my help. I was in denial.

"Of course, I will carry you into the bathroom and help you shower," I would answer. 

Later, Lynn said she wished I had kept in touch with our friends on a regular basis. She was struggling and didn't think she could be the source of support that I needed. I wasn't thinking clearly enough to think that I should reach out to a friend for support. 

Inpatient Hospitalization

Lynn was admitted to the hospital again in August of 2000.

I was blaming myself for every way I had failed to help her enough. I felt guilty that maybe I had not done enough to clear the mucus from her lungs. I mentioned earlier that I would do something that involved tapping on her back, her left and right sides, and on her chest. This was to break up or loosen the mucus that built up in her body. This excess mucus was a breeding ground for infections.  

These infections and excess mucus were causing problems with her breathing.  

I felt guilty that I had not kept the house cleaner. Lynn was worried that dust and other particulates could get into her lungs.

So, we went to the University of North Carolina Medical Center Hospital in Chapel Hill, because they had specialist doctors who worked with cystic fibrosis and other lung diseases - they call them pulmonary specialists.

The IV antibiotics are adapted to the person's body. They also have different ways of delivering antibiotics. Once she was admitted to her room, they set about inserting an IV in her arm. This time, they had to run the IV all the way up her arm to get it closer to her heart which will pump the antibiotics throughout her body and I guess it is close to her lungs, where the infection was.  

This was unusual, more complicated, and a longer process.

It was painful to watch them piercing her body with a needle. I would NEVER have let anyone do anything to break or bruise her skin under normal circumstances. It was killing me to see this happening as I held her hand.  

No, this wasn't the first time she had IV antibiotics, but this was so difficult for her and by extension, it was difficult for me. I was trying to be strong for Lynn. We were both crying.  

As they finished getting the IV into her, I had to get up and walk a bit to keep from passing out. I paced around that floor of the hospital and returned to her side. I felt ashamed for leaving her. It was just a few minutes and I had made it through the procedure, but I was beating myself up for every failure on my part.

This reaction on my part had not happened previously when she had to go into the hospital. There was something more symbolic and disturbing about this time. This time the reality of her survival was the thing that overwhelmed me.

I stayed with her and tried to do anything she wanted or needed. Anything to make the time more passable for her.  

They let me sleep in the bed with her. I don't think they had the heart when looking at either of us to ask me to leave. I think there are dorm rooms or other places where family members can stay when someone is in the hospital.  

I must have looked like hell. I felt so overwhelmed.  

The days were something of a blur. It felt like a bad dream.  

I would tell myself, "This isn't happening."

You cannot unsee the woman you love gasping for air or short of breath doing just the smallest of things... routine things.  

My entire reality was now like being in a fog, or I felt like I was in a dark and misty place. I felt like I had wandered out into the mist and sanity itself was somewhere in the distance like dim lights along the coast as seen from a boat on the ocean.  

Things were changing for me and I felt powerless over it all.  

I felt such despair and hopelessness.  

It wasn't supposed to happen like this. They were going to find a cure someday. A cure for cystic fibrosis. I had hoped and prayed so long and desperately. This was happening too fast for me. One day you are on top of the world, the next day the love of my life is fighting for her life and might die.

I tried reaching out to my family. Lynn had said she wished I had kept in touch with our friends, but for some reason, I thought to reach out to my parents and siblings.  

I was about to find out that to my surprise they didn't have the capacity to demonstrate any compassion or concern during all this.  

What kind of mother, father, sister, or brother doesn't know that this is extremely painful and a time when I would need help and support? That's a rhetorical question. I am sure that my readers understand the pain I am describing.

In a previous chapter, I said that I was losing my faith. That isn't entirely true. I did pray desperately that what was happening now would change, that Lynn would get better, stronger, healthier. I also prayed that the pain I was feeling would be bearable also, so I could be there for her.

I had those feelings of a fog hanging over me as I tried to navigate life overall. I had an important role to play in the lives of others. I was a psychotherapist.  

The nightmare of everything happening with Lynn was about to get more complicated and confusing.   

Chapter 49: When Two Become One Body - Love, Beauty & Serenity

I was reading a number of different books when she came to me. I had a few books stacked near the bed. It was April 15, 2000. A normal day in the life of a psychotherapist who felt on top of the world.

Yes, I'm talking about me.  

Two of the books were somewhat related to one another. One was from the study material that I had on psychodynamic/psychoanalytic therapy. I had been pursuing credentials in this area though I was aware that the theories were hard to prove.

I suppose there are a number of concepts from psychodynamic/psychoanalytic theory that is useful to know as a therapist. Defense mechanisms, like projection and transference, rationalization, and repression.  

Then there was a book on ego state theory. This did seem like a valuable framework for understanding the different states of mind that describe the normal processes of life. Making love is a state of mind altogether different than other states of mind - I certainly am not in that same state of mind when I am at work.  

The other book was called "Paperclip Dolls." This was peculiar. It was written by a woman who had different alter personalities put this book together. She said she used pictures from magazines to create a scrapbook that depicted parts of herself. Hmm.  

Was she one of the dolls? That seemed to be what she was suggesting. She seemed to have discovered aspects of herself from the work she had done using these pictures that she cut out of the magazines. 

I had only recently stumbled upon this book. 

I had been searching for information about DID, treatment, abuse, trauma, and other terms. Those were keywords I used in my searches. This was before I had discovered some of the more bizarre conspiracy theories described in the previous chapter.

I had found forums, chat rooms, directories, and web sites that I had bookmarked to explore later. Some of these online materials and forums were directed perhaps to therapists and other mental health professionals. However, even those were available to the public

Many confused people could end up believing in things that never happened. Delusions. Some people seemed to have become certain about what happened to them, and yet if it were true, it would be an explosive conspiracy theory or set of conspiracy theories.   

What had happened to these people? So many curious ideas were running through my mind. My mindset was somewhat philosophical. Curious. Inquisitive.

I let that go. I looked up and Lynn was at the bedroom door.  

She had a mischievous smile on her face. "I want sex," she said.

"Me too," I said, my face lit up with a smile. I took off my shirt as she was unbuttoning her shirt.

She dropped her shirt on the floor and removed her bra. Seeing her breasts, I felt aroused and excited. My heart was racing with excitement. I was aroused as I removed my pants. I paused captivated by the sight of her as if I was seeing her for the first time.   

She dropped her pants and underwear and I paused for a moment to take in the sight of her and she let me look. Lynn knew how much pleasure I found in looking at her. No doubt, it felt good for her to know she was so beautiful to me.  

"Perfect," I said. She smiled. Looking down she noticed I was excited, but she let me look for a moment as I paused taking in the sight of her… adding the words "Amazing! Beautiful!"

I started to move toward her but before I got very far, she was getting onto the bed.

She was on top of me, her tongue inside my mouth, mine inside hers. We were moving. She was on top. 

I could feel both of our hearts as she pressed her lips against mine. Her arms around me squeezed tighter and tighter. I could feel her breasts against my chest. 

She said, "I feel like I can't get close enough."

"I know," I said, returning to kissing her.  

She was supporting herself somehow, just slightly elevated near our waists.

She paused for a moment as she felt me between her legs. "Oh, you’re too close, sweetie," she said with a sigh of pleasure all the same.  

This might be confusing but remember, Lynn can’t get pregnant. She was telling me that she wanted to be a part of me when she said she can’t get close enough, but despite that desire, she had to be sure that she didn’t get pregnant.   

She continued to move and to wrap her arms closely around me. Her kisses were so desperate and passionate. She was hungry! So was I.

Our arms and bodies moved as I caressed Lynn and she squeezed me tighter. I had a habit of letting her squeeze maybe because I was concerned about her comfort.

Those words repeated in my mind. "I feel like I can't get close enough."  

"I feel like I can't get close enough."  

I dropped a bit and let go with a smile. She sensed what had happened.  

She just smiled. "I came already," I said.

"That's okay."

She was still above me smiling.  

I asked genuinely curious, "that was good for you?"

"Yeah. I am glad you felt good." 

"But you didn't."

"Yes, I did," she said.  

"Not really," I said… adding “You were so hungry for sex and you didn’t have an orgasm, how can that be good enough?”

"We can do that another time, she said, adding, "I'm happy."

"Wow, so am I," I said with a chuckle. 

I reflected upon how amazing it was that this was happening so often, nearly every day as if we had just gotten engaged… as if this was the “honeymoon phase” that I heard described somewhere – something that exists for one year.

The passion was so incredibly intense. You would think we had just gotten engaged a few months ago... or that we had not seen each other in a few weeks or months.  

She got up to start the shower for us. I lay for a moment reflecting on things. 

I felt a wave of serenity wash over me.

I was in love. Because she was in love with me. We were one. 

"I love you," she said.

"I love you so much" I added.  

I then smiled or laughed a bit.

"What?" she asked.

"I was thinking of that song by the Moody Blues and how I would like to sing it to you, but I can't... I can't sing."

"It goes” ... and I spoke the words,

"'Cause I love you,
yes, I love you,
oh, how I love you,
oh, how I love you.’

I like the way the singer sings those words like he is overcome with a feeling that MUST be cried out the same way you cannot contain yourself when we make love. But it’s not the same thing, I can and would cry out those words in public. Then it repeats... those same words.

'Cause I love you,
yes, I love you,
Oh, how I love you,
oh, how I love you.’"

Then I said, "That's how I feel! I want to tell the whole world that I love Lynn."

I then added, “and you KNOW I would do just that, over and over, no matter how many times someone has heard it!

She just smiled.  

I had the thought that I would have shouted these words out to the world not just after we made love but anytime. So often and in so many ways I felt these feelings of intense love for Lynn and an intense desire to tell everyone about it. 

Shortly later that evening, I was still thinking about Lynn’s happiness and what that meant for her.

I thought about how much I cared about her happiness, her dreams, and her aspirations. She wanted a master’s in fine arts (MFA) – could I help with that?

What about a kiln so that she could bake her pottery at home? Maybe I could earn more money.

Chapter 39: More About the Joys of Extended Family Life

Lynn’s Extended Family Visits

Lynn had a cousin who came to visit a few times and we went to Scranton, Pennsylvania to see her cousins. 

One of those occasions, when they came to visit us, was in the summer of 1997. This was so much fun because the kids loved me. They had two girls. One of them Becca (short for Rebecca), was maybe five years old when she met me, and her sister, Tammy was 12.

We gave her cousin, Mary and her husband Frank, the spare room that had a couch that opened into a bed. Their daughters Becca and Tammy slept in the other room where we had the bookcase and the computer.

Unlike visiting my parents during this time, it never crossed my mind that there would be an issue with the fact that Lynn and I had not had a wedding. We certainly didn’t pretend to sleep in different rooms or in a separate bed. 

It’s worth noting that when we went to visit them in Pennsylvania, it never occurred to Lynn to bring up the topic of sleeping arrangements. Of course, we were going to sleep in the same bed or bedroom when we were visiting. 

Getting back to her cousin’s visit in 97… 

On the first day of their visit, we went to the beach at Carolina Beach. This wasn't far from where Lynn and I had gone on our first date all those years earlier. 

I loved spending time with both Becca and Tammy. 

We found a spot on the beach where the waves came from the open ocean. And after the grown-ups, not including me, got comfortable, I was being called upon by Becca and Tammy to go into the water.

As we started walking into the ocean, Becca reached up with her hands to me and said, “pick me up.”

So, I held her in my arms and the three of us -Tammy, Becca, and I - went into the deeper water as they requested.

We were riding the waves. 

I was drinking saltwater and asked for a break to wash out the nasty taste in my mouth.

Becca was soon asking to go back into the water.

I looked at her mother, Mary, and asked, "how far can she go?"

Mary said, "as far as you want to go."  

I thought, "of course, it's not like I'm going to let anything happen to Becca. Plus, she can swim." 

I knew there wasn’t a rip current that can pull you under very easily so I felt confident that we could keep going as far as they wanted to go.  

We went far enough that when we were riding the waves, my feet were barely able to touch the bottom without being in over my head. I would try to jump up at times and Becca would stand on my legs pushing me down at that moment when I was about to jump up and over the waves.  

It was so amazing and so much fun. I felt like a big brother or a father figure. It didn't seem that her father had any problem with the fact that the kids wanted to spend more time with me than with him... Lynn's cousin didn't mind this either.  

The "grown-ups" stayed on the shore talking. What I mean is that Lynn, her cousin Mary, and her husband Frank were deep in conversation while we - Becca and her sister Tammy - played in the ocean.  

Yeah, this was so exciting. I think that I was meant for this.

They spent a few days with us, and I became the one that was responsible for entertaining the kids. I didn’t mind and in fact, I loved it

I noticed my heart was racing the entire time. I couldn’t sit still. It wasn’t an uncomfortable feeling, though. I just was full of energy and excitement. I couldn’t even slow down enough to use the bathroom; I was so full of energy.

I took both the girls to the nearby grocery store and a few other places because they wanted to spend time with me. I let myself be carefree and child-like. Yes, I was a responsible adult, but I still had the ability to be playful.  

This might be useful when I do play therapy if I get clients who have children. 

Then the girls, Tammy and Becca wanted to go roller skating. So, I went outside in our neighborhood and let them skate there. It was a quiet street without much traffic so that was ideal for this.

During the visit, the grown-ups wanted to go roller skating too. That was the only thing I could not do. The little girls were completely able to do this. 

Lynn and her cousin, Mary and Frank could roller skate, along with the girls but I could not do that.

We drove to the University of North Carolina, Wilmington campus. They had a network of sidewalks where they could go roller skating. We rented roller skates for the adults. The girls had brought their own skates.

Lynn encouraged me to try to skate. I could not get moving. It was frustrating. Everyone else could do this and I could not. I gave Lynn my hands and let her pull me around on the skates for a little while. This was one of the times, other than at bedtime when Lynn and I were alone together. We let the others go ahead and skate while Lynn tried to teach me how to skate.

Her cousin or the girls would approach us, say a few words and it seemed that they could sense that I felt uncomfortable and frustrated. I wasn’t being rude but I said I felt embarrassed.

Finally, I just took off the roller skates and walked a bit next to Lynn. The girls were roller skating still.  

We later drove up to Scranton, Pennsylvania, and stayed with her cousins for a few days. 

Welcome and Unwelcome Touching

What I am about to describe is important to note because not all sexual touching is welcome, and gender has nothing to do with that. I have been touched in my genital area when I did not want that to happen and had said so. That would be sexual assault.

No, means no! No matter what!

Lynn was a bit mischievous on the drive up there. While I was driving, she unzipped my pants and started stimulating me. I said, “what if someone comes up on the right?”

She knew what made me feel pleasure and how I liked to be touched. It had to be gentle and there are places where I do NOT want to be touched down there. But Lynn knew how and where to touch me and where not to touch me. 

This was different than the impression I got from my parents. My mother would describe sex as something she owed to her husband. She had said when I was a young adult that “even if she might not be in the mood, she understood that a man has needs.”

Yuck, that seemed so cold, unromantic, and just plain disturbing. I also had rejected all those traditional ideas such as the man being the head of the household. 

I felt lucky to know that she wasn’t the one in the relationship who had to wait to initiate sexual contact, which was something I had been noticing for a few years now. I liked that a great deal.

I wanted a more egalitarian relationship, and I definitely did not want to be the person within the relationship that had the greater sexual appetite or interests. 

Like the highway we were traveling, the relationship was a journey that we both were on together.

Spending Time in Pennsylvania with Lynn’s Cousin

When we were staying with her cousin, Lynn and I slept on an inflatable mattress on the floor in their living room, but Lynn’s cousin gave us their bedroom to get dressed and shower. 

There’s a contrast that stands with my own family and Lynn suggesting that we sleep in separate beds when we are in their home. Elsewhere I make clear that if I had been more assertive and just said to my parents that is not acceptable and we either won’t visit for Christmas or we will get a motel, Lynn would have gone along with that. 

With her cousins like with her mother, that was the last thing that ever crossed my mind! I felt a need to make that clear.

Again, I was like the big brother or babysitter. I suppose that word is a misnomer when it comes to spending time with a girl who is in her early teens. Baby just doesn't apply at this point. The point is that I was the one who spent time with the kids while the "grownups" did their thing together.  

It was exciting for me. Lynn was happy to see her cousin.  

The girls loved to show me places, where we could walk to have fun - the park, a nearby school with swings... or they would show me things in their rooms. We played games in the yard or on the driveway outside. They weren't tomboys. They just liked having fun and showing off.  

Many people have noticed how much I enjoy and relate well to kids. Lynn's cousin clearly enjoyed, and Lynn appreciated, the freedom that they had while I occupied the kids.  

They could just forget about their kids for a few days!     

It was a perfect arrangement!

Does this imply that I wanted to have kids? Yes, of course. Lynn felt bad about this. She knew that I understood the situation and she knew that I was in love with her.

I might love my job. I might love the kids but being in love with your wife is obviously different. Neither the job nor the kids in my life when they were around could meet the deeper and more profound needs that exist for a person or a couple.

Lynn was mine, chose me, wanted to live with me, and that, more than anything else, brought me the deepest and most profound joy and serenity.

I haven't known anything more profoundly important than this love that we shared. Nothing else has meant as much to me as Lynn.

Some parents have described the bond they have with their children to be even more important than that of a couple. I can’t imagine a more intimate bond than Lynn and I had.

Chapter 32: My Other Family and Sexual Discovery with Lynn

My Other Family

I was still maintaining a relationship with my parents and siblings. But I only saw them for part of a day most of the time when they did visit.

I think that when my brother and/or sister came they came for part of the day only, as well. I guess they were too good for us.

While I had sought their advice regarding the moral dilemma of living with Lynn and how we couldn’t get married, it seemed clear that they understood I had no other options available to me. And it seemed infinitely clear that we were living as husband and wife and that we made love routinely (almost every day).

Then we went to visit for Christmas, and Lynn suggested that we sleep in different beds because we were under their roof. Symbolically, this felt so uncomfortable. It cheapened the relationship, made it seem less than the union of two becoming one body and one soul.        

In my mind, we had been married in the eyes of God. When Lynn said that we should sleep in different beds at my parent's house around Christmas, that seemed to only confuse me. 

In retrospect, if I had said that they must see us as two people who are committed to one another like any husband and wife, she would have been open to my reasoning. I should have said, “well, if they dishonor our union, I am not going there!”

I should have said to them that if they want me to visit for the holidays, we will be sleeping together like any married couple.

To be honest, our union seemed more holy or special than anything I saw in my grandparents, cousins, parents, or even with my brother and his wife.

I would be so affectionate with Lynn everywhere and all the time. I had seen my parents kiss, but it was so perfunctory. I am not saying that a couple should make out in front of others, but they should look like the kiss says something like Lynn and I did. We took the time to meet each other’s gaze and slowly moved toward one another, letting our lips meet and pause for just a moment.

I don’t remember my brother ever showing that kind of affection when he brought his wife for the holidays. 

With Lynn and me, it was inescapable and unavoidable… for us to hold one another, hold hands. I also loved this because it was a declaration that said, “I love Lynn!” 

Actually, I NEEDED to be close to her and feel her body when I was visiting my parents. I had never felt completely comfortable with them. 

Despite knowing that what we shared was so right, so blessed, so holy, somehow, I sometimes couldn’t shake the religious brainwashing I had experienced.

I don’t know what I said but it gave Lynn the impression that I had doubts about what we should be doing.

Then Lynn would ask, "do you regret what we did?"

I would answer, "no, of course not."  

I don't think she understood what I was saying because I didn't quite understand what I was saying.         

In my mind, this was not any less holy than the union of my parents, or grandparents, or less holy than any union of any husband and wife. If anything, this was more special than what I had seen. In my extended family, I never saw anything that said, “I can tell they are in love.”   

Intimacy Issues as a Form of Discovery

I do know some things about how couples make love. As a psychotherapist that is something that is discussed. I learned about the male and female sexual responses. I studied master’s and Johnson’s research on activities that are practiced by couples. 

What was unique about our relationship, the one Lynn and I had was that neither one of us expected the other person to have any experience in this area or to be sexually compatible. It was more of an area of discovery for both of us. 

Some though not all gay men do enjoy anal sex. Often among heterosexual couples, this is more pleasurable to the male because they think the anal passage is tighter. While some females may want this, it is more common for males to ask for this. 

This was not something I was seeking in my relationship with Lynn nor was she. 

Speaking of same-sex relationships, oral sex is another way that people express love and is commonly practiced by gay men. I would learn this from my clients in the future.

I knew that this fluid is made up largely of the same components as mucus. That fact made oral sex seem unappealing. Previously, I mentioned when Lynn was in the hospital or at the clinic and she was asked to provide a mucus sample, I noted that I had a weak stomach, meaning it made me queasy.

These observations about mucus meant that I did not expect, nor did Lynn expect oral sex despite the fact that this is “normal” and commonly enjoyed by the recipient. 

No part of our bodies was “taboo” though. We both endeavored to explore anything that would increase the pleasure of one another in bringing about an orgasm. So, we did everything short of activities that would involve tasting each other’s bodily fluids. 

I felt such incredible love for Lynn that I wanted to demonstrate that in every way possible. I knew she wanted to do the same for me and with me. 

But it was more of a case of exploration and discovering what brought us the greatest pleasure and what we were both comfortable doing. 

I felt so lucky that this was happening. I felt lucky to know that I wasn’t expected to do anything with some level of competency as I had heard discussed later in couples therapy or with my individual clients. 

I felt lucky also that we weren’t talking about sexual competency. 

Sex was for us a way of expressing our love and it was intense and intensely pleasurable as a result of the love that we felt for each other. 

 

After we knew what activities, we were comfortable doing we could offer or ask for certain things. I was still a believer (a Christian), and so I saw this as a blessing, a miracle, and a true sense that we were one body. Our bodies were our gifts to one another. And that was holy! More holy than I could have imagined.

As an atheist, I still see things in the same way, but I use different words to describe things. I know some atheists, such as Sam Harris, describe spiritual experiences, but I still associate that with the supernatural and I do not believe in such things. 

I’m a romantic and I believe in the concept of the two become one and are united forever, which is as long as we exist.