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Chapter 23: The Body, Illness, and the Ghosts of Shame

There’s a kind of silence that doesn’t come from others—it comes from inside. It’s the silence born of shame, planted early, before you have the words to resist it. It tells you your body is something to hide. That pleasure is dangerous. That certain fluids—mucus, discharge, even tears—are “unclean.”

 

That silence shaped me long before I ever met Lynn.

 

It started in childhood. I had a single memory of something like anal continence when I was young perhaps in 2nd grade, and instead of comfort or understanding, what I felt was dread. Not just of the accidents themselves, but of discovery. Then later I discovered Freud’s pleasure principle and discovered what happened. It could not possible be discovered. But why? Because for a moment I embraced pleasure as a young child?

 

I lived in fear that my mother might find evidence of my body’s betrayal—and reject me for it. There were no open conversations. No space to ask questions or seek reassurance. Just shame. Shame for being seen.

 

Shame for being human.

 

So I learned to hide. To compartmentalize. To disconnect.

 

Then, as an adult, I met Lynn. And Lynn lived in her body with honesty. She didn’t apologize for it. She wasn’t provocative—she was present. When she undressed, it wasn’t for show. It was for trust. For closeness.

 

Her body was not a performance. It was an invitation: See me. Hold me. Love me. It was also something she knew I wanted.

 

But I was still unlearning.

 

Cystic Fibrosis is a disease of the lungs, but its calling card is mucus—thick, persistent, impossible to ignore. It wasn’t abstract. It was physical. It showed up on tissues, in coughing fits, in the way her breath caught just a second too late. It interrupted kisses. It was a signifier of something I wanted to deny.

 

And I HATED it… wanted to destroy it. It wasn’t just frustration—it became a fantasy of justice. A yearning for something I could see and fight.

 

More than once, I dreamed that CF was a demon. Not a metaphor. A literal monster. Like something out of Buffy the Vampire Slayer. I pictured it stalking through hospital halls, feeding off the weak, coming for my beloved. In that daydream, it came for stalked Lynn and I wanted to kill it. Not for a second did I consider whether this monster could hurt me. I was eager and ready to kill it.

 

Because this thing—the mucus, the coughing, the breathlessness—it wasn’t just a symptom. It was a violation. A thing that didn’t belong in the sacred space that was Lynn’s body. And I couldn’t do anything in reality. I was powerless.

 

But the shame - the programming - still whispered. It got mixed into a combination of secret discoveries of pleasure and signs of a disease that interfered with the normal life that we were building.

 

Lynn never kept me at a distance from her illness. When we met with the respiratory therapy team or sat through hospital consults, no one asked if I had the right to be there. They didn’t question whether I was her husband. They didn’t blink when I was invited into the examination rooms or into conversations that would typically remain private. They knew. Everyone knew.

 

I wasn’t just a visitor. I was her partner. And I needed to understand everything—how Cystic Fibrosis worked, what it did to her lungs, what we could do to fight it. I needed to know the terrain of the body we were both trying to protect.

 

I wasn’t just the person giving her a ride from Wilmington to Chapel Hill. I suppose Lynn conveyed something profound in calling me her fiancé.

 

The respiratory team showed me how to help. How to tap her chest and sides to loosen the mucus. There was no awkwardness. No question of whether it was appropriate for me to touch her there—across her chest, her ribs, even over her breasts. It wasn’t new. It wasn’t foreign. It was sacred. It was care. It was love.

 

It was our life that I tried to normalize - we were just two poets, two creative types who fell in love.

 

And what’s more: Lynn never flinched. Never acted like there was anything I shouldn’t see. Her body was never a battleground between intimacy and decency. It was our terrain—hers, yes, but shared in trust. I knew how to soothe it. How to support it. And how to mourn it, quietly, when she needed more than I could offer.

 

There was no shame there. No performance. No false modesty. Just the raw, necessary truth of what it meant to love someone whose body was fighting a battle it never chose.

 

Her body—beautiful, fragile, strong—was the first place I ever felt truly wanted.

 

And it was also the battleground.

 

I never saw her as broken. But I sometimes feared I was. That the silence I’d learned in childhood had cost me something sacred. That my uncertainty, my hesitation, my effort to unlearn shame was something she had to bear with me.

 

Years later, with someone else—Codi Renee—I found myself embracing physical pleasure more freely. I offered the kind of tenderness and desire that, in truth, was always meant for Lynn—the one I had truly been in love with.

 

But in my confusion, I mistook that willingness—my openness, my eagerness to give—for something deeper. I thought it meant I loved Codi Renee. I wanted to believe it. She even insisted it must be true because I said so.

 

But it wasn’t love. It was never love.

 

It was physical attraction wrapped in the illusion of connection. Desire masquerading as devotion. I see that now. And it feels tragic—not because I gave myself too freely to someone else, but because Lynn, the one who had loved me fully, the one who had taught me how to open, didn’t get to receive the fullness of what she awakened in me.

 

She deserved that depth. That freedom. That joy.

 

What I gave Codi Renee was shaped by what Lynn helped me discover. But the motivation with Codi Renee wasn’t love—it was the desperate hope of being good enough for someone who kept me at a distance. The desire to be chosen. To prove I could be desirable.

 

Lynn never made me prove anything. With her, I was already enough.

 

This isn’t a chapter of regret. It’s a chapter of recognition.

 

I recognize now that Lynn didn’t just teach me how to love—she taught me how to stay. To sit with what’s hard. To touch what’s vulnerable. To stop pretending that we need to be “clean” (whatever that means) and whole to be worthy of love.

 

CF never gave me the fight I wanted. No monster in the hallway. No thing to destroy. But Lynn gave me the chance to fight in smaller, truer ways. To stand beside her. To learn that sacredness isn’t found in perfection—but in discovery of each other with no expectations.

 

In every tear, in every kiss, in every quiet act of care—we were writing a new language. A new covenant.

 

One that said:

You are not disgusting. You are not broken. You are not alone.

You are loved.